I'm scheduled for having my port removed Tuesday morning. Yesterday we did chemo in the hand and it was no problem. Losing my port is sort of bittersweet. It's been my comfort food for myeloma.....if that makes any sense. Having the port makes me feel secure, in an odd way. I could keep it, it's doing better. But if every time I work out or do something atypical it gets messed up, then it becomes a hinderance. Now, IF, I were to start up more intensive chemo again, I could put it back in. Doing chemo once every two weeks, no port is ok. Weekly or twice weekly chemo would absolutely require a port. We're not there now. So bye bye port....you've served me well.
Gary Peterson is a fellow myleoma patient. He has a website that discusses myeloma survival rates; comparing doctors, hospitals, etc. It...
I no longer work, but I did work for over 6 years while managing my disease. For a while, I had some real challenges with human resources. I...