Leukemia and Lymphoma Society Provides support for Myeloma, Leukemia, & Lymphoma via patient support, financial assistance, policy & advocacy, and research. Services include travel assistance, insurance co-pay assistance and First Connection program- connecting newly diagnosed patients with survivors who have experience with specific cancer
HealthTree for Multiple Myeloma Provides patient education and funds & advocates collaborative research
International Myeloma Foundation Largest myeloma organization providing patient support, research, education and advocacy
Multiple Myeloma Research Foundation Education, awareness and funds myeloma research
Institute for Myeloma and Bone Cancer Research Independent non-profit aimed at finding more effective treatments and eventually a cure. Dr Berenson's non-profit that is responsible for my survival
American Cancer Society Patient support, education, research
Stand Up to Cancer Funds and develops new cancer treatment via collaboration among doctors, research institutes
Livestrong Patient support and advocacy
National Coalition for Cancer Survivorship Advocates for quality cancer care for anyone impacted by cancer
Disability Rights Legal Center Non-profit advocacy for the rights of persons impacted by cancer
Cancer and Blood Specialty Clinic In Southern California, provides care, support and treatment for cancer patients
Myeloma Survival Awesome site providing statistics, data, information about myeloma survival. Looks at various facilities, providers and doctors. Advocates for seeing myeloma specialist to get best results
Triage Cancer A national non-profit that provides education on the practical and legal issues that arise for cancer patients, caregivers and families impacted by cancer
Healthwell Foundation Funding assistance for co-pays, prescriptions and out of pocket expenses
Patient Advocate Foundation Funding assistance for co-pays, prescriptions and out of pocket expenses
legal issues that may impact individuals diagnosed with cancer and their caregivers, through events, materials, and resources.
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ReplyDeleteHi Matt, thanks for blogging about your myeloma journey. We saw your list of resource links. Here is an update link for your list as Myeloma Crowd has moved to HealthTree. Please take care. https://healthtree.org/myeloma/community
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