Saturday, April 7, 2018
3 Beers In
It's national beer day for what's it worth. I continue to inch towards 7. It's a cinch. I've asked a lot of folks, well three, who are on darzalex and get ivig. No one has heard that the ivig can impact darzalex efficacy. Berenson indicates anecdotally that the ivig can help the body fight myeloma. Makes sense given it's boosting the immune system. Phan so far is the only one who hasn't been all on board with the ivig. He does want me to check with my kidney doctor before I can do the ivig, which is about a 4 or 5 hour infusion. I have an appointment with Doc Froch the nephrologist on April 18. But I don't want to wait, so I'm going to figure it out on my own this weekend. Ideally I'd like to get ivig this week and then the week after I have darzalex. I'm getting tired of the low immune system. Yesterday I thought for a second I was getting another cold. Today, I don't think so. But another cold on the backs of the flu and cold over the past two months would have pissed me off and impacted my mental stability. But...the skin issues aren't going away and per the dermatologist, a boost in the immune system should help the skin. It's worth noting that in 2014 and 2016 I had miserable surgeries related to my immune system. It's 2018 so, we'll see how things go. I am checking in with that doctor this week to see how it all looks. Fingers crossed.
We've gained some traction with our petition for Oral Parity. The Senate has now proposed a bill that mirrors HR 1409. Fresh off the pr...