Sunday, February 7, 2016

Tom Shell's post in the Myeloma Beacon

The thing about myeloma is that at times it feels like a never ending journey. But that's a good thing. If the journey ended, that would mean we lost the fight. We strive for normalcy. But our new normal compared to our pre-diagnosis normal is very very different.  For instance, I have a normal week ahead of me. Work, meetings, gym, walk Gracie, hang out with Leslie, watch tv. Normal right.

But this week I also have chemo. And I'll have the dex roller coaster. Thursday I have a dermatologist appointment to look at some odd bumps under the skin behind my left knee. Thursday I also will bring a 24 hour urine container to work. It's time to collect. Friday I turn in the urine and give 5 tubes of blood. That's the new normal.

Tom Shell writes for the Myeloma Beacon, which by the way is a great source of information about myeloma and to read about other patient's and caregiver's experiences. Tom recently wrote about his journey in his post This Ride Never Ends.

Give it a read.

http://www.myelomabeacon.com/headline/2016/02/02/myeloma-in-paradise-this-ride-never-ends/comment-page-1/#comment-59744

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