The thing about myeloma is that at times it feels like a never ending journey. But that's a good thing. If the journey ended, that would mean we lost the fight. We strive for normalcy. But our new normal compared to our pre-diagnosis normal is very very different. For instance, I have a normal week ahead of me. Work, meetings, gym, walk Gracie, hang out with Leslie, watch tv. Normal right.
But this week I also have chemo. And I'll have the dex roller coaster. Thursday I have a dermatologist appointment to look at some odd bumps under the skin behind my left knee. Thursday I also will bring a 24 hour urine container to work. It's time to collect. Friday I turn in the urine and give 5 tubes of blood. That's the new normal.
Tom Shell writes for the Myeloma Beacon, which by the way is a great source of information about myeloma and to read about other patient's and caregiver's experiences. Tom recently wrote about his journey in his post This Ride Never Ends.
Give it a read.