Yesterday was my monthly Berenson visit. I got most of my lab results the day before. Most. We were missing the upep, which represents the paraprotein or bad protein in my urine. It's a percent of my total protein output over a 24 hour period. I've had problems in the past with the lab screwing this one test up. They've been doing good lately, so I wasn't too worried about it. But when I saw the % wasn't there, I called my contact at the lab. She told me that she had been out for a couple of months on medical leave and that while out the lab didn't order some of supplies needed to run the upep test. What? If one person is gone, a lab can't do what it's job is? Very curious. Fortunately all my other numbers looked great. Kappa light chains lower than they've been in a long time. So no changes to my regimen. All good.
I've been battling this pesky cold. Not myeloma related. Berenson said I need to be on some antibiotics so it doesn't get out of hand. Definitely with a compromised immune system, I need to knock this shit out. He told me to ask Phan to write me a prescription. We called Phan's office and he was out for the day. So we asked a nurse at Berenson to ask Dr B if he could write a prescription since Phan wasn't around. Dr B said he didn't feel comfortable writing it, that my primary doctor should. Ummm... Berenson prescribes hard hitting chemo drugs but wouldn't prescribe an antibiotic? Weird. So one of Phan's nurse tracked Phan down. Phan talked to Dr B and then Phan wrote the prescription. It reminded me of when I was first diagnosed how bleeping hard it was to get various doctors to communicate with each other. Anyhow, I got the antibiotic and I'm now relaxing to get over this cold. Tuesday is chemo and I don't want Phan delaying it cause I'm sick.
We know how I am with routines and missing treatment.
The LLS has a whole host of free booklets on key support topics. Follow this link to download or order. One such booklet has to do with ...