Saturday, September 6, 2014
Beer, fundraising, my new life
Yesterday I had my last day of this current chemo cycle. Now I get a two week break. Just in the nick of time. It's time to let my body rest. Folllowing chemo, I came home took a nap and then headed up to West Hollywood ( 30 miles aka hour and half drive from home) for a fund raiser at a bar called the Surly Goat. Shmaltz Brewers (maker of He Brew and other beers) has a connection with myeloma and the Institute of Myeloma and Bone Cancer Research, Berenson's non profit. They've been doing these events across the country. Let me say what a seemingly great job these beer reps have. They promote their beer, do events and get to laugh at their job. Not a bad gig. Perhaps I've found my post port planning career. Anyhow, I went with Matt and he was my designated driver. Not that I got stinking drunk, but my tolerance is not what is used to be. What's also interesting is that Dr. Phan, a non drinker himself, has always told me not to drink. He says it supresses the bone marrow's blood making capabilities. But Dr Berenson, when I saw him last week, wanted to make sure I was attending so I could have a beer with him. And here's photographic evidence that Dr B is a real person. He wore jeans and a plaid shirt, just like a regular guy. Like all things myeloma, different mind sets by medical professionals. And that's my job, to sort it out. In this case I sorted it out by deciding a couple of beers or three is ok. I also decided that stopping at Canter's Deli on the way home for a black & white cookie was also ok. BUT, they were all out, so I settled for a backup cookie. Good, but not the same. And now, it's 4 am and my dex insomnia is kicking in. Just as well, I'll go the gym soon. Sweat the beer out. Later today I am meeting some UCLA to watch today's game. Today I might pass on the beer though. And Sunday is the key day. Vikings first regular season game of they year. So excited!
2.47 latest creatinine 3 years on darzalex/pom 8.5 years since diagnosis 3 hours drive time to Berenson's office 60 total miles roun...