Some examples of Wrong:
Recent text from friend:
Friend: When are we hanging out?
Friend: Seriously, come by and hang out.
Me: I wish I could but my immune system is crap, so I gotta be extra careful and can't do it
Text to therapist (In Feb):
Me: Hi Dr, I'm not going to make tomorrow's appointment, I need to take Gracie to a oncologist
Dr: Well, this is less than 24 hours so I'll need to charge you.
Me: Um, it's 22 hours, but whatever
Dr: Want to do a phone appointment? Otherwise I'll charge you
Same therapist (5 months later):
Dr: Hi Matt, just checking in. How are you?
Me: I'm surviving
Dr: Glad to hear you're doing well
At my visit with Dr Berenson last week, he said my myeloma is nearly undetectable. I'm coming up on 4 years on the Darzalex, Pom and Dex regimen and it's working great. If my lab results are the same next month, he'll do a bone marrow biopsy to check on abnormal plasma in my marrow. This surprised me a bit, given he typically doesn't see the point in doing a biopsy since we're not changing treatment at all. My plasma count was at 70% when diagnosed 9.5 years ago, so he'd like to get a new baseline. That's fine with me. We'll just do it in his office next month. The funny thing is sometimes I forget he's an actual doctor, I'm so used to coming in and chatting about non medical stuff with him. But he's a skilled and top specialist. Thank goodness.
WOW!!!! I'm so jelly Matt! Maybe the key is the regular steroids you take??? How often do you? Every other day? Your dose? I'm a wreck, but better than June, July, Aug. And hey, I say get together with friends. Outside, distance, masks, but get together with friends, hike, bike, go outside, volunteer at your local animal shelter... Gracie would want you to do that :))ReplyDelete
Maybe we can have a "phone appt" chat soon. Or visit here, outside?? But get out and about, as you're doing so well! Soooooo happy for you Matt!!! xoxo Julie