Saturday, May 9, 2020

Trajectory: path of an object through space, or the path of life that a person chooses.

Infusion day today. I got in and out in 4.5 hours. That's a record. A sub cutaneous version of Darazalex was announced this week that would cut down the time to 4-5 minutes. I talked to Phan and my buddy Mike about it and none of us is inclined to switch. First, why change what's working? I'm a real creature of habit and my monthly infusion has been a life changing treatment, so I'm not going mess with it. Second, it sounds like you'd get 4 very uncomfortable shots in your stomach with a hole lot of liquid. Doesn't sound fun at all.

Also of note, today's infusion was my third one since the pandemic lockdown started. With an infusion every 4 weeks, that translates to roughly at least 9 weeks of being on lockdown. Thus a 5 hour infusion with other people, friends and nurses, is a welcome change. It's like my big outing every month. Given myeloma patient's high risk status for the virus, my isolation is likely going to continue for a while. Sure I might get a little bolder over time, but generally vigilance continues.

After my infusion, I came home and took a 2 hour nap. Normally I take a good nap during my infusion and come home feeling energetic. But today I just couldn't get comfortable in my infusion recliner. The dex made my left leg twitch like crazy and I couldn't find a position to minimize it. So I was exhausted when I got home. Fortunatley, my roid rage was at a low level. Last month it was out of control. Worse, I've grown to dread and hate my dex crash. That'll be Sunday and Monday. It sucks.

After my nap, I sat out front with Leslie as she trimmed roses. I watched crows land in the branches of the now full trees in front of our house. There's a real system to trimming roses, where you snip very close to where stem meets stem. But today while sitting there, I got caught in a mental loop. Are they called branches on roses as well. Or are branches reserved for trees. And then my mental loop veered towards the phrase branching out. I'm sure tree branches came first, but I wonder who was the first person to say they were branching out. Was it a hundred years ago? Or was it office speak that arose perhaps 20 or 30 years ago. It's pretty widely understood nowadays what it means.

Also of note, we're within 358 days of my ten year anniversary since my myeloma diagnosis. 9 years came and went with just a spattering of fan fare. We're also 17 months away from my 60th birthday. I am still struggling with how powerfully the disease changed my life and how I basically missed my 50s.

The good news is my treatment still is working tremendously. 3 and a half years on Darzalex (Dara) and Pomalyst and my numbers are as good as ever. Physically I feel excellent. I'm in decent shape. My weight is at a manageable level, even with the lockdown carb fest.

My lockdown list remains largely uncompleted. I only have occasionally bouts of boredom and cabin fever. So I'm doing stuff. Perhaps just not the stuff on my list.

Anywho, that's it for my infusion day report. I don't have a whole lot to say.  Hope we're all staying as safe and as well as can be.

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