Wednesday, April 24, 2019
As I write this, I am 199 hours away from being at 8 years since the exact moment of my multiple myeloma diagnosis. Coincidentally this week my creatinine is 1.99, which is stupendous. It's all fairly miraculous, if you go for those sort of things. That first year, my creatinine soared to over 8, my nephrologist said I would die if I didn't do dialysis (which is I refused to do) and we couldn't get a drug regimen that worked. And here I am, 199 hours from 8 years later, healthy and kicking ass. Sure Friday is my monthly Darzalex infusion. Sure I take a daily 1 mg Pomalyst pill. Sure my arms and legs are covered with bruises given my thin skin (pun intended) and 8 years of steroids. Sure my emotions go up and down. Sure, blah blah blah. But overall, I give things a two thumbs up.
2.47 latest creatinine 3 years on darzalex/pom 8.5 years since diagnosis 3 hours drive time to Berenson's office 60 total miles roun...