Friday, May 11, 2018

Is this swollen

In the never ending quest to fight my crap immune system and ward off warts, my dermatologist is trying all kinds of stuff on my fingers. We did the the powerful heat lamp and no success. Now we're doing a pilot project on the worst of the fingers. It's some kind of lotion that basically fries the shit out of the things. She told me not to pop it, but I so want to. I won't though.

From Cure Magazine: My New Normal Isn't Quite So New Anymore

Wednesday, May 9, 2018

Crazy Cancer Lady

I recently discovered a cancer focused podcast called REACH - Research in Exercise And Cancer Health.   The episode I listened to was an interview with the Crazy Cancer Lady about living with a terminal cancer. She doesn't have myeloma but she is living with an incurable cancer and her insight in how she deals with this is spot on. I hate to say it's great given it's a talk about cancer, but it's a great discussion. It's about an hour long, but if you listen to podcasts, this is an episode you ought to hear.

It's episode 38 and here is the link.

And here is the link to the Crazy Cancer Lady's blog.

Big News of the Darzalex Front.....

The FDA has  approved the availability of Darzalex to newly diagnosed myeloma patients who are not eligible for a stem cell transplant.

Wednesday, May 2, 2018


Today is 7 years since I was diagnosed with multiple myeloma. That's 84 months. In 1998 the Vikings were led by Randy Moss (84) and Randall Cunningham (7). They finished 15-1 and at the time scored the most points of any team in NFL history. It was a memorable season, except for the fact that it ended painfully and sadly with an upset loss the falcons in the NFC Championship.  That marked the first year that as an adult I didn't watch the super bowl. And to this day I hate Dan Reeves and the stupid dirty bird.  Instead of the super bowl, I went to a movie with my mom and Ed, although I can't remember the movie. I do remember we saw whatever it was at the AMC theaters in Century City, which for many years had the earliest Friday matinees in town which was perfect for when I had every other Friday off of work. It's also where I saw my first movie by myself; a Bronx Tale with Robert DeNiro, one of my favorite actors of all time. 

On the myeloma front, I'm feeling pretty good. Basically on cruise control, which in late May of 2011 Dr Phan told me was our goal.  Thank you everyone for the support, kind words and love. It's been a hell of a journey and it has a long way to go. I'm ready for whatever lies ahead.