I no longer work, but I did work for over 6 years while managing my disease. For a while, I had some real challenges with human resources. It was maddening, annoying and scary. Maintaining insurance was a huge motivation for working. I learned a bit about a cancer patient's rights in the work place. In this regard, below is a link for what, I am sure, will be an informative and helpful webinar:
CANCER AS A DISABILITY: YOUR RIGHTS IN THE WORKPLACE
Hi Matt, thanks for checking in with my blog and status. You and I have similarities with still working for years, with our MM Dx and treatments. I finally "gave up, gave in" this last June 2017, as treatments and side effects were just wearing me down. As a college faculty member, I had super duper benefits, and my drama began when I retired, as now I pay to continue status quo. And, I'm "too young" lol for MediCare. Dang myeloma, sabotaging our lives. I still recall your hilarious pic of your shoes in your office trash bin :))))))
ReplyDeleteHoping all is well with you. Are you still on Darza? Monthly? Numbers ok? My IgA is moving up a bit, so we're increasing to 40mg Dex first. Then maybe going up on Pom. And I've asked about going back to Darza more frequently. Have you any experience with going from monthly back 2x a month? Ok, take care and thanks for checking in, and commenting :) Julie