Dr B made the call the other day. No sign of myeloma in my blood or urine. He'd like to do a bone marrow biopsy to confirm. In the past he has poo pooed bone marrow biopsies as not telling us much. When diagnosed I had 80% plasma cells in my bone marrow. It would be interesting to see what it is now. I see Phan this week, so let's see what he has to say.
And what does complete remission really mean? I will keep doing my monthly darzalex and 21 days of pomalyst. No change there. But it means I am doing pretty darn good. It's funny that I hit this point two weeks after retiring. I retired to take care of my health and enjoy life while I feel good. But it did cross my mind that perhaps I could have worked longer. But I was done. All my energy went to work and not towards embracing life. I will say that two weeks of retirement and now the no visible signs of myeloma have led to some mental challenges and self evaluation. It's probably time to see the therapist to discuss.
I do feel great. I went on a short hike today and I am definitely not in the shape I was just a few short months ago. Still need to drop some pounds. Tomorrow I get my forehead stitches out, but I have another spot of my forehead that requires the MOHS procedure*. We'll have that done tomorrow as well. Friday is chemo. Next week I go to Chicago for a couple of days to sit on a panel discussing the patient experience with darzalex.
* MOHS Procedure
Gary Peterson is a fellow myleoma patient. He has a website that discusses myeloma survival rates; comparing doctors, hospitals, etc. It...
I no longer work, but I did work for over 6 years while managing my disease. For a while, I had some real challenges with human resources. I...