I'm pondering pushing up my retirement date a week or two. I need to stick around to train my replacement who starts July 10, but after that I am free. I have been hugely tired lately. I get about 10 hours of sleep a night and it's not enough. Waking up in the morning is a real challenge. I'd be lying if I said it didn't have me wondering what's going on. I'm also on this weird slow weight gain. Granted I'm not working out much, but I watch what I eat. My labs all look good. My kidneys are better than ever. So I'm not sure what is up. It could be remnants of the ear/sinus infection.
I'm on monthly darzalex. Berenson wants to check my blood every couple of weeks because he's not sold on the once a month infusion. But our hands are tied. FDA says that is what we do and insurance will only pay for once a month.
I'm seriously grumpy and on edge. Lately at work people tell me they're jealous or say it must be nice or that I'm lucky. In my mind, I'm thinking fuck off all of you, I have an incurable cancer, that's not lucky. Right now those thoughts are in my head, but I'm edging close to reminding people why I am retiring. That will certainly make for elevator awkwardness.
Gary Peterson is a fellow myleoma patient. He has a website that discusses myeloma survival rates; comparing doctors, hospitals, etc. It...
I no longer work, but I did work for over 6 years while managing my disease. For a while, I had some real challenges with human resources. I...