Tuesday, May 23, 2017

You Got to be Kidney Me



I just got my latest lab results. Everything looks good. Darzalex continues to work like a charm.  Thursday I see Berenson and I'm sure he'll give the go ahead to switch to maintenance, which means only monthly infusions. That will be fantastic and perfect timing for my retirement/embrace life future.  I also take Pomalyst, an oral chemo drug. Not sure how that will work in maintenance. Note that this timing fits with the FDA guidelines for the drug., meaning that insurance won't have issues with it.


What's amazing to me is that as I soon as I started darzalex my kidney function improved dramatically. For at least two years, my creatinine hovered around 3.5 to 4, meaning I hovered around failure range. But for the past few months, my creatinine has been below 3 and with my most recent labs the number is 2.36. Recall that early on in my diagnosis, the number was over 8. I was on a strict renal diet and my kidney doc at the time wanted me to start dialysis.  I even had a stupid fistula (surgically linking a couple of veins in my wrist to create a super vein) to be used during dialysis. I was not symptomatic for having failed kidneys, so opted not to do dialysis. Oh and I fired my kidney doctor, who was so gloom and doom it was depressing. The thought of dialysis scared the absolute shit out of me. It seemed much more daunting than chemo. And if I'm being truthful, the thought of doing dialysis along with chemo had me thinking fuck all of it and I'd pull a Marley and Me maneuver and I'd find a tree to a curl up under.  But my kidneys hung in there and look at them now!  Amazing and quite a relief.


John Oliver recently did an in depth look at the dialysis industry, including a look at Davita, a leader in providing dialysis.  It's a scary ass story and scary ass industry. It makes me quite glad that I never did dialysis.




1 comment:



  1. Here is my story. greatful

    My wife was diagnosed with a cancer, ( before i learnt of Rick Simpsons oil / RSO ) the hospital said to do chemotherapy and radiotherapy.. she did.. and went through a lot.. but no cure, after a while the doctors said the cancer was spreading and we could look for alternatives.. i searched the internet and found out about the oil.. asked alot of questions.. watched the videos etc.. we made the oil our selves but it couldn't just work out we were doing more harm than good and the cancer was still there spreading, i searched more on the internet i found a testimony on how a lady got the oil via an email, ricksimpsoncannabisoil96@gmail.com immediately copied the email: i wrote to this very email ricksimpsoncannabisoil96@gmail.com and in an hour later i got a reply back asking me some few questions, and enlightened me on how to get the oil in the next 48hours, i placed my order and in the next 48hours the medication oil got to us. immediately my wife started using the oil, it been two months now, since my wife has been using the medication oil and the cancerous problems are gone this very fact was clarified by the doctor.

    i put up this piece of testimony for the sake of those once who need this oil to please don't die in silence their is a cure for your cancer today email: ricksimpsoncannabisoil96@gmail.com and get the oil.

    ReplyDelete