Sunday, October 2, 2016
5 5 5 5
It's October 2. 5 years and 5 months since my myeloma diagnosis. In a week I'll be 55. Over the past month, it seems like how my myeloma manifests itself has changed. Light chains and protein are inching up. Not good. But kidney function is approving remarkably. That's a great thing. What's it mean? I have never had bone involvement. But for the past few months I've been getting increased levels of bone pains. Berenson says it's arthritis and not myeloma. Phan say it's neuropathy. In the next few days I'll do a bone scan to see what's up with the bones. But I can say that this pain has the potential to be a game changer. It impacts my ability to work out and train for Kilimanjaro. It impacts my mind set. I can deal with fatigue and can handle it. But pain, I'm gonna have to ponder that. Yesterday I saw friends that I don't see often. I was crashing from chemo and hurting across the body. I had to bow out of the fun, so I could get home and sleep. For the first time in a while I'm really hating this new normal that myeloma has created. It's bullshit. I definitely need to work through this challenge.
The MMRF has free weekly webinars on the impacts of COVID-19 on myeloma patients. Register here.