Saturday, February 28, 2015

March Madness

It's almost March Madness time. The excitement of college basketball. The excitement of doing your brackets.  And here is the place to do your brackets...I've created a group, Blood Cancer Madness 2015, on Yahoo Sports. $10 buy in. Half of funds go to the Leukemia and Lymphoma Society, and the other half will go to 1st, 2nd, and 3rd.  Last year we had nearly 80 people play. This year, we want to exceed 100.  Below is the link to join.  The password is bloodcancer.

Selection Sunday is March 15. Games start March 19.

https://tournament.fantasysports.yahoo.com/t1/invitation?g=17401&k=4ac6d082d73c5ddf

Friday, February 27, 2015

Blood Work Friday

Wrapped up another cycle of maintenance chemo this week. Today was blood and urine lab work.  Since we draw my blood from my port, I get the blood drawn at Phan's office and carry it to the lab. That's how we do it!

Monday, February 23, 2015

Lack of Focus

Focus.  I've been able to focus for nearly four years.  I've gotten good at thinking about work when I'm at work and not thinking about my health routine. But it really is getting more difficult. Tomorrow is chemo and I'm already thinking about how I'm going to feel the rest of the week. Weds I'll be jacked up, on fire, super productive. Thursday and Friday, I'll be tired, grumpy, not feeling right.  That's all I'm thinking about right now...how I'm going to feel.  The key with this here myeloma is balance.  Balance between thinking about today versus thinking about the near and long term future. 

Thursday, February 12, 2015

MMRF 5K March 22 in San Francisco

On March 22, with my Mom, I'm doing the MMRF 5k in San Francisco.  The past couple of years, I've done different events, but this is my first time doing an MMRF walk/run.  I walk, no running for this guy. 

The MMRF is an amazing organization that provides support, creates awareness and funds for finding a cure for this currently incurable cancer of the blood. If you'd like to contribute to the cause, just follow the below link.  Thanks in advance! 

http://support.themmrf.org/site/TR/RaceforResearch/General?px=1607203&pg=personal&fr_id=1980

Monday, February 9, 2015

Cure Talk This Thursday Feb, 12

Here's the link to this Thursday's Cure Talk at 3 pm west coast time, 6 pm eastern time. The subject is Early Treatment with Dr Irene Ghobrial from the Dana Farber Cancer Institute in Boston.

http://www.curetalks.com/event/rsvp/Early-Treatment-of-Myeloma-with-Dr-Irene-Ghobrial-/145/

Sunday, February 8, 2015

Thumbs Up from Dr B

I had my monthly visit Dr Berenson. All is good. We continue on maintenance. Protein and paraprotein remained the same. My light chains dropped to the lowest level in a long time, which might help explain the low creatinine and improved kidney functions. I am low on vitamin D, so Dr B ramped up my prescription and suggested I get back and see a kidney doctor. I haven't been in several month, but it's time. 

Tuesday is the start of another cycle of revlimid, dex, and velcade.

And that is all I got.

Monday, February 2, 2015