Recently I was invited to join some of the leading myeloma advocates in a discussion of the concerns and unmet needs of myeloma patients. I was absolutely honored and humbled this week to join 8 fellow patients and 2 caregivers. Each of the participants has a powerful voice and all are passionate and so so smart. At times I was scratching my head, wondering why I was there.
It was an amazing, dare I say life changing, experience. I saw a couple of old myeloma friends and made some new lifelong friends. The myeloma community is amazing in its strength. I could go on and on. But I'll leave you with this unofficial photo of the group. I'm in the back on the right, partly covered by shadows.
Gary Peterson is a fellow myleoma patient. He has a website that discusses myeloma survival rates; comparing doctors, hospitals, etc. It...
I no longer work, but I did work for over 6 years while managing my disease. For a while, I had some real challenges with human resources. I...