Wednesday, July 29, 2015

Leukemia and Lymphoma Society First Connection Program

The Leukemia and Lymphoma Society has a number of great programs. One is their First Connection program. It connects newly diagnosed patients with someone who has similar experiences with the same cancer. Tonight was my first training to be a First Connection Volunteer. Soon I'll be off and running. When a newly diagnosed myeloma patient calls the LLS,  I may be provided the patients contact info. I'll have one or two calls with the patient to provide support, listen and share my experience. It's a great program and I'm excited to participate and give back.

Also this week, I did my first myeloma twitter chat in partnership with WeGo Health. It's an hour Q and A, where fellow patients share information or answer questions. My job as host was to pose the questions and keep the discussion moving forward. It was fun and interesting and I hope to do more in the future.

Day 15 of the current chemo cycle was yesterday. Tomorrow I do my 24 hour urine collection and give several vials of blood. Next week Berenson.

The good news is that creatinine is back down to 3.3. and hemoglobin is up to 11. Both good omens for positive news with my myeloma numbers.

And that's my story.

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