Friday, June 5, 2015
Today I returned to the pulmonologist. When we saw him the other day it was me and Leslie. Today it was just me. I went straight from work. His first question wasn't how I was doing? It was, how's my wife. He then told me how wonderful she is, that she is an amazing caregiver and caring person and I was lucky to have her. All true.
Leslie has been with me throughout my 49 months of myeloma. Taking care of me, talking to doctors, driving me around, giving me shots, encouraging me and on and on. Being a caregiver is a tough job. In many ways, I think cancer is tougher and scarier on the caregiver and loved ones than it is on the patient.
We had a scary week this week. It was a real reminder to me that I'm dealing with something serious and I can't get lax about things. When I woke up Monday night with trouble breathing, Leslie jumped to action...nursing me back to a level of comfort. Tuesday, if I had been up to me, I would have stayed home, not seen the doctor and talked/lied my way into having chemo. Leslie said no to all that. She took me to Phan, took me to a pulmonologist and to the lab.
Long story short. Leslie was right. I had a close call this week. I'm better. Not 100%, but better. I and we are fortunate to have our caregivers and are loved ones.
2.47 latest creatinine 3 years on darzalex/pom 8.5 years since diagnosis 3 hours drive time to Berenson's office 60 total miles roun...