Wednesday, October 1, 2014
So my myeloma numbers have been dropping. That's a good thing. All signs point to getting back to maintenance soon. Friday I'll wrap up the current cycle. Next week we do our monthly test. Mid cycle I do basic blood work. Got those results yesterday.The disappointing thing? My creatinin. It went back up to 4.9. That's it highest in over a year. It typically is a reflection of how my myeloma is doing. But if my myeloma is doing ok, why is the creatinin going up? I have gotten a little lax on my kidney aka renal diet. So I guess I better tighten things up. Need to lower my phosphorus and potassium intake. We all draw a line in mental sand of what we'll tolerate. I'll put up with chemo till the cows come home. It's a known quantity. Dialysis? That's an entirely different story. I haven't done it. I do have a fistula in my left wrist, just in case. But my plan is never to use it. Dialysis feels like an absolute life changer. It's a scary thought. So now I'm on pins and needles till my next lab work. I should know better. No point in being anxious.
I'll admit it, I'm feeling good right now. I've been on darzalex and pomalyst for about 2 and a half years. I just got my latest...