Wednesday, October 1, 2014


So my myeloma numbers have been dropping. That's a good thing. All signs point to getting back to maintenance soon. Friday I'll wrap up the current cycle. Next week we do our monthly test.  Mid cycle I do basic blood work. Got those results yesterday.The disappointing thing? My creatinin. It went back up to 4.9. That's it highest in over a year. It typically is a reflection of how my myeloma is doing. But if my myeloma is doing ok, why is the creatinin going up?  I have gotten a little lax on my kidney aka renal diet. So I guess I better tighten things up. Need to lower my phosphorus and potassium intake.  We all draw a line in mental sand of what we'll tolerate. I'll put up with chemo till the cows come home. It's a known quantity. Dialysis? That's an entirely different story. I haven't done it. I do have a fistula in my left wrist, just in case. But my plan is never to use it. Dialysis feels like an absolute life changer.  It's a scary thought. So now I'm on pins and needles till my next lab work.  I should know better. No point in being anxious.

1 comment:

  1. When you get your test results, do they tell you your GFR? That is the percentage of kidney function. My creatinine always corresponds to my GFR. When it is as high as 4.9, my GFR is around 10-11%. I get both of these numbers from the Comprehensive Metabolic Panel. I hope your kidneys are OK.


Berenson Oncology Success Rate

 Some reading about my myeloma specialist's success rate. A press release and an article from Targeted Oncology.