Saturday, September 20, 2014
Some Thought Provoking Stuff
Pat Killingsworth is one of the first myeloma patients/advocates I came to know 3 long years ago. He is upbeat, honest, and is a real mentor and friend to me. He's written books about living with myeloma and is a frequent contributor to the Myeloma Beacon. His own blog serves as a great source of information and inspiration. Lately, he's been documenting his attempts to find a treatment to stop & reverse his recent relapse. His latest post is a bit sobering, eye opening and thought provoking. The comments are worth reading.
I'm no expert, but I do know that myeloma is a personal cancer. It manifests itself differently in most everybody. In that regard I'm bothered by some definitive comments about how to attack and treat the disease. I don't think you can make blanket statements. As an example, i know Berenson's approach isn't for everyone. But it is for me. He has worked wonders for me. I'd recommend him to anyone that asked. But I also would not tell people that their approach is wrong. There is no right or wrong. You chose a path and give it your best shot.
Having vented all of the above. Here is the link to Pat's latest. It's a great post and really gets you thinking. http://multiplemyelomablog.com/2014/09/relapsedrefractory-patients-face-difficult-choices.html
The Leukemia and Lymphoma Society's Light the Night event is virtual this year. I've joined a team to honor Tom Swick, a friend and ...