I made a video last night, but I really didn't like it. I didn't want to edit myself, but in this case I am. Anyhow, today a new season starts. Back to treanda, back to heavy duty chemo.
I've had it pretty easy for the past year and a half. Basically it's been my off season. I've felt great, my body wasn't getting beat up.
My numbers have been inching up. Nothing critical. In fact, some numbers, like creatinin, are still looking good. We met with Phan yesterday and he would have been perfectly ok with me continuing on maintenance. He's also perfectly ok with me switching back to my old chemo. There's no right or wrong here. We do it, we test, we see if it works. Well, it'll work.
But I want to stay ahead of the game. I don't want to see my kidneys getting worse and then we make a decision. I don't want to become symptomatic and then we do something. I want to be aggressive. That's going to be my style this new season. Attack, attack, attack. Myeloma won't know what to do. Myeloma will be on its heels. It's go time. It's a new season. Where is the opening game fanfare? Bands, prime time tv. All that.
We've gained some traction with our petition for Oral Parity. The Senate has now proposed a bill that mirrors HR 1409. Fresh off the pr...