Friday, November 1, 2013
Today was my monthly Berenson visit. The first since my recent scare. My monthly lab results were good. We track a bunch of stuff, but the key monthly numbers are total protein in 24 hour urine and the % of protein that is bad.. My total protein went up. It could mean something. It could mean nothing. But the percent of protein that is bad went down from 56% last month to 42% this month. Doing the math, the amount of total bad protein that the myeloma is producing is down. That is good. My creatinin is 3.65. A good number for me. Remember that it's the bad protein that beats up and damages my kidneys. My creatinin staying at a good number is a reflection of the myeloma being under control.
Tomorrow we fight another day. And tomorrow is 30 months since my diagnosis. 2.5 years.
We've gained some traction with our petition for Oral Parity. The Senate has now proposed a bill that mirrors HR 1409. Fresh off the pr...