Friday, November 1, 2013
Today was my monthly Berenson visit. The first since my recent scare. My monthly lab results were good. We track a bunch of stuff, but the key monthly numbers are total protein in 24 hour urine and the % of protein that is bad.. My total protein went up. It could mean something. It could mean nothing. But the percent of protein that is bad went down from 56% last month to 42% this month. Doing the math, the amount of total bad protein that the myeloma is producing is down. That is good. My creatinin is 3.65. A good number for me. Remember that it's the bad protein that beats up and damages my kidneys. My creatinin staying at a good number is a reflection of the myeloma being under control.
Tomorrow we fight another day. And tomorrow is 30 months since my diagnosis. 2.5 years.
I recently met John, a fellow myeloma patient and advocate. He's involved in a program called Multiple Myeloma Journey Partners. Here...