Monday, September 23, 2013

Miscellaneous Tidbits

We were in Northern California this weekend. My niece, Destiny, was having a baby shower and post wedding celebration. She and Justin, her husband, got married in Costa Rica and we couldn't attend. We stayed in Berkeley where my mom lives. My previous visit was one month before I was diagnosed, me, Leslie and my uncle Jan drove up to Berkeley for my mom's birthday. I was so darn tired that trip. I told several people that I was simply tired because I had quit eating meat and wasn't get enough protein. Boy was I wrong.

It was awesome seeing everyone. Destiny has about 2 and half months to go and looks great. My mom is amazing. Her energy level and drive is pretty darn impressive.

Here's a photo of the family. From left to right,  Uncle Jan, my sister Dana, Justin, Destiny, Leslie, me, my mom Merryll, and Jan's daughter Brigitte.

Now, here's the tidbits:

-Today on Twitter I put up for sale or lease my allegiance to the Vikings. As Adrian Peterson's daughter asked, how can you lose to the Browns? Ridiculous. So I'll listen to any reasonable offer from teams looking for a new fan.  All teams will be considered except the Cowboys (never ever ever-see 1975 playoffs), Saints (cheaters-see bountygate), Falcons (the dirty bird-see 1998) and the Patriots (Bill Belichick).

- We stayed in a hotel in Berkeley. Normal check out is noon and we took at late check out of 1. It got me thinking, didn't hotel check out times used to be like 2 or 3 in the afternoon? When did it change? I blame the shift on Vegas hotels.  My theory is at some point, their research showed that if visitors were required to check out earlier, guest might need to stay an additional night, because meeting the 11 AM check out is not possible. I could be wrong, Thus, Vegas started the earlier check out trend. Just a theory. Also of note, I've a fan of staying in hotels. There are times I think I could live in a hotel.

- I love airports.  Mind you I not a big fan of the actual travel process. But airports are so cool. It's fun checking out different airports in different cities.  If I'm flying on my own, I always try to get there early, so I can have a beer, people watch and guess where other people are going. LAX, Los Angeles's airport, is a fricking dump and embarrassment to the city.  They've talked about renovating for decades. It's still a dump. I'm a land use planner and I've interviewed for planner jobs at a couple of different airports, including LAX, over the years. Never got an the airport job.

-Any myeloma patients do yoga? Does it help with strength, energy, flexibility? Thoughts? I'm getting so inflexible, with bad balance and aches, I'm thinking I need to add yoga to my program.

- Do any patients get light headed due to their anemia? Has anyone fainted after getting up too quick? I haven't, but there are times I stand up and have to slow down and lean over a bit to get some blood into my noggin.

- Any vision issues?  Anyone experience slow adjustment/focus when going from looking at something in the distance to something very near? Does Dex mess with our vision?

-Lastly, do a lot of folks live remotely from their myeloma specialists and travel at some regularly basis to see the specialist? How's that work. I'm fortunate that I live near Dr Phan, my primary oncologist and where I do treatment, and Dr Berenson, who is my specialist. I just got to thinking this weekend, if we lived elsewhere, how would my treatment work. Any insight folks can offer would be appreciated

And that's it. Feeling much much better this week. Still get weird nighttime heat onset. Thursday is chemo and I'll talk to Dr Phan.  Friday will be my big monthly labs, including the 24 urine collection.  These labs will give an accurate story on how the myeloma is doing.

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Berenson Oncology Success Rate

 Some reading about my myeloma specialist's success rate. A press release and an article from Targeted Oncology.