Well, today I get a procrit shot. My latest blood count was 9.9. Just under the 10.0 threshold for not needing a shot. So close. I'll go at noontime for the shot and while at Phan's office I'll get my monthly labs in preparation for tomorrow's Berenson visit. The key numbers I'm looking at is creatinin, total protein and the upep, or bad protein.
I've been on maintenance now for 8 months. That's pretty darn good. And each month, my numbers have been holding steady or even improving. That's the goal. That's Berenson's goal. What's interesting is that there are so many options for treating this myeloma thing. That's a good thing. But I think it makes it tough and confusing, with so many options, to know what's the right thing to do. I hear folks talking about total therapy, stem cell transplants, etcetera and etcetera. Obviously I have a doctor who takes his own path with treatment. But it's working and that is what counts. So the plan is to keep this going, just the way it is.
I've been doing a lot of stairs lately in preparation for March's Big Climb. Damn I move slow. I'm no spring chicken. But the good news is I am getting into pretty good shape. This morning my weight was down to 196. When we came home from our summer vacation I was up to 212 and I actually had my kidney doctor tell me to lose weight. From what I've heard, not a lot of patients undergoing chemo are told to lose weight. Anyhow, I'd like to be at about 185. At that weight I'll be lean and mean and a myeloma fighting machine.
Gary Peterson is a fellow myleoma patient. He has a website that discusses myeloma survival rates; comparing doctors, hospitals, etc. It...
I no longer work, but I did work for over 6 years while managing my disease. For a while, I had some real challenges with human resources. I...