Thursday, September 27, 2012
Next week is Berenson, so this is in preparation for my monthly appointment with him. We usually have the results before we even see him, so I have a good idea of what he'll say. It's hard to believe that I'm coming up on 17 months of dealing with this. Wow, just wow. I feel good, and everyone says I look like I don't have cancer. So that's all good. My perception of cancer has certainly changed. It's a powerful disease, changes everything in your life....but not at all how pictured it. When first diagnosed I had vision of losing 40 pounds and throwing up every morning when I was walking Gracie. That hasn't really happened. I have become more aware of the health care and insurance crisis in this country. So many people work and work and work, simply to maintain their insurance. It's a real balancing act between doing what's right for your healing versus doing what's needed to stay employed and insuranced.
This whole thing has given me a confidence boost though. More comfortable in my own skin and more comfortable with telling the truth. My Libra tendencies to have everything balanced have kind of gone out the window.
Trying to put together a fund raising event that I can propose to the LA Chapter of the LLS, which focuses on all blood cancers. I have a good idea brewing, but gotta work out some of the details before it's ready to be unveiled.
And that's about it, for this brain dump. There's more up in there, but I don't want to delve too deep....on a typical day, I try to tell myself to not think about it and to live a normal happy life. But carrying pee around for 24 hours kind of forces the thought process.
Tuesday, September 25, 2012
Friday, September 21, 2012
Fast forward 5 years and irony of ironies...I have a blood cancer. So in March of 2013, I'm going to do the Big Climb again and raise funds for the LLS. Funny how things work. But this time, doing it as a team....so far I have team commitments from Matt Arms, Destiny (my niece) and Justin (her fiance). Registration isn't until November, but got to get in early, cause the number of registrations is limited.
Good stuff. Here's a link to the big climb website:
Monday, September 17, 2012
Tuesday, September 11, 2012
Kidneys continue to improve. With my creatinin at 4.42, I'm right on the cusp of moving out of kidney failure category and into severely damaged. That's huge. It means they may not be totally trashed after 16 months of chemo and having the myeloma protein beating them up. What's interesting is that after two cycles of maintenance chemo, my protein counts have decreased. That's a good thing and a real pleasant surprise. Going onto maintenance had me nervous, but I guess we're doing this thing right.
Friday more blood work. Fingers crossed for more improvement.
Monday, September 10, 2012
Friday, September 7, 2012
Wednesday, September 5, 2012
Monday, September 3, 2012
Last year, about a month before the diagnosis, I was in vegas and got so sick. Fever, chills, fatigue. As I might have mentioned before, I had a super strong almost vision that I was dying. It was a powerful and scary feeling. Suffice it to say, at that moment I knew something was wrong.
Fast forward 15 months. After lots of chemo, hospital visits, etc, etc, I made it back to vegas this weekend. Felt great, had a good time. Watched a lot of college football, lost most of my bets (Which I attribute to wearing of my vikings visor), and pondered how far I've come. Whats funny, is I went with Matt Arms and both nights there we didn't even make it to 10 pm. Way to enjoy the vegas life, old timers. Still a good trip.
Now home and in the final home stretch to the wedding. I downloaded the blogger app to my phone so updating as I walk Gracie.
It's 3 AM as I write this. Earlier today I had my monthly darzalex infusion. Five hours. The first 4 go by swiftly. I get a large benad...