Friday. I've worked all day, every day this whole week. That's yet another first since starting the myeloma challenge 16 months ago. I'm feeling pretty good. Blood count is up, energy is up, and so on and so on. Via twitter (perhaps the greatest thing ever) I've been "connecting" with other myeloma patients from all over the place. It's interesting to see how other people are dealing with the treatment and mental challenges. What's most interesting, given my current mental state (very happy on the scale of happiness, but trying to figure out the future weighed against myeloma), is that other people experience the same sort of feelings and have the same questions. I suppose it's this way for anyone with a serious chronic illness. You have to do your very best in blocking out the "what ifs" and negative thoughts. There are times that I'd like to crawl into a cave and isolate myself from everyone. But that's not the way to do this. So as of right now, I've got good things ahead...a marriage, a trip to vegas, a happy dog, a bike planning conference, and so on and so on.
Next week, it's back to chemo for a maitenance session. It's very short...not even enough time to watch a whole movie. Last time at Phan's, we borrowed the dvd for Dark Knight so we could finish at home. Next week is also my complete, monthly lab work. Then on Sept 5, it's back to Berenson for the monthly check up.
Gary Peterson is a fellow myleoma patient. He has a website that discusses myeloma survival rates; comparing doctors, hospitals, etc. It...
I no longer work, but I did work for over 6 years while managing my disease. For a while, I had some real challenges with human resources. I...