Yesterday it was back to chemo. No problem. With my new drug regimen I get a huge dose of benedryl. That shit knocks me out. I get loopy, which is fun, but then I get tired. So I napped through most of chemo and came home and went to bed for the night. At 6 pm. My lab numbers were ok. No major improvements, but stable. And I continue to feel pretty darn good.
Tomorrow I am getting a blood transfusion. I'm a little low on blood. While I am doing that, Leslie will go to my work to listen to what our soon to be new insurance provider has to say. No one is happy about the change, it's a money saving move by the city. But it's being forced on us and naturally those of us in the midst of health issues are worried what the change means for our treatment. Insurance up to now has been awesome.
One side note....Dr Phan seems to have a fair number of new patients, all with some sort of blood cancer. Not necessarily myeloma. But it makes you wonder about our environment and what sort of toxic crap we're exposed to every day.
Gary Peterson is a fellow myleoma patient. He has a website that discusses myeloma survival rates; comparing doctors, hospitals, etc. It...
I no longer work, but I did work for over 6 years while managing my disease. For a while, I had some real challenges with human resources. I...