Tuesday, September 27, 2011
Another double entry day
You're looking at a picture of my perm a cath (and my man boob). It's a couple of tubes that are connected straight to a major artery. I've had it since mid July. It has to be flushed every week or two, can't get wet and carries a risk of infection. We had it installed when I did plasmapherisis. It stayed in, in case I was to do dialysis. However, I now have my av shunt also known as the fistula....which said repeatedly can lead to a number of double entendre jokes, Double fistula, if you will. But with the shunt, the perm a cath ought to be removed in a week or two. Yes!
Today it hit me. I'm taking my kidney meds, I'm sticking to a kidney diet, and I'm flushing. But the kidneys are not quite seeing the improvement that the cancer is. So what's the missing ingredient? Exercise, of course. I walk Gracie sure, But that's it. I haven't really worked out since I got the perm a cath. I don't want to sweat on it, I don't want to get an infection and I can't shower....bathes only, which is working. But I did a little research on the internets today and exercise is good for kidney disease. I need to exercise. So once these tubes are out, we'll start slow. Ride a little, lift a little, maybe even swim....which won't put strain on my bones. I need to attack this kidney issue. Fuck you myeloma and the kidney problems you've caused. But I've got it under control.
My home for the next few hours. Food, Vikings blanket, laptop, phone, Darzalex and dex.
Gary Peterson is a fellow myleoma patient. He has a website that discusses myeloma survival rates; comparing doctors, hospitals, etc. It...
Today is 7 years since I was diagnosed with multiple myeloma. That's 84 months. In 1998 the Vikings were led by Randy Moss (84) and Rand...