Well, we saw Dr Berenson on Monday and felt encouraged by what he had to say. That encouraged feeling disappeared quickly Tuesday when Dr Phan told us that I needed to get in to a kidney doctor right away, that I was on the edge of kidney failure. We'd been trying to schedule an appointment with a new kidney doctor, given the first one has been totally disengaged. I got a Tuesday appointment and was told to check in to the hospital, that I needed to get a process called plasmapheresis....which is being done to prevent permanent damage and help me avoid dialysis.
So now it's Saturday, I'm still in the hospital, I have new tubes sticking out of my chest and I've been hooked up to a machine 3 days in a row, with 2 more to go. The good news.....my kidneys are showing improvement and I'm feeling better. But Weds was bad, I felt bad, the doctors were scaring me and it didn't sound good. I'm feeling better about things again. I've also already started my new drug regimen. And the doctors seem calmer.
I'm here until at least Monday and then I really hope to get out.
Tuesday night (I think) I was wheeled downstairs in the middle of the night for an ultrasound. When it was over, the tech said someone would get me back to my room. I closed my eyes and actually fell asleep. I woke up 30 minutes later, still in this dark room in the basement. I'd say they forgot about me. I got of the gurney and walked in to the hall and found a cleaning woman who flagged down a nurse who flagged down my transport. They definitely forgot about me.
The LLS has a whole host of free booklets on key support topics. Follow this link to download or order. One such booklet has to do with ...